Saturday, 14 March 2015

Update for March, 2015

5 March 2015


Happy Chap Goh Meh to all...the sweetest smile from Sean..







14 March 2015

‪#‎autism‬ ‪#‎autistic‬ ‪#‎mygiftedson‬ ‪#‎specialkid‬ ‪#‎imitation‬ ‪#‎echolalia‬

Teach Sean to speak is never been easy than we thought.... he is 5 yo but the way he 'talks' is still like 1 or 2 yo child, i mean very limited 'talk', mostly he would scream or shout....He likes to imitate our words/sentences, but his pronunciation is not so good...that's y i encourage him to talk by imitate my sentences...3 words in a sentence, the word increase day by day...

Example,

1. Sean loves mommy.(3 words)
2. My name is Sean. (4 words)
3. I am five years old. (5 words)
*word increase

Of coz it's nvr been easy, so we nvr expect this is a fast process...no...by repeating those sentences daily, he will remember it better......Sean is very slow in verbal, but in other things, he is quite fast learner tho....DON'T GIVE UP..... so let us fight Sean...fighting!!!.....
*thanks to Sean's speech therapist for this useful tips...

*His last speech therapy was on 11 March 2015..



15 March 2015

Remember how I teach Sean to speak yesterday?.. increase his words in a sentences from time to time...a reminder to myself, never push him so hard, do not expect this is a fast process...be lots of lots of patience..the most important thing is, do have fun and enjoy the moment...watch this vid, Sean is now coming to 4 words in a sentence, he says "my name is Sean.."...well done son...;D..






18 March 2015


Our little parrot

Me: Shenna, hv u done ur homework?
Sean: Chena, ...ur homework?
Shenna: .....😧..
Me: Shenna! Did u hear me?..(stood up n off the tv)
Sean: Chenna! ...hear me?...(stood up n ON the tv)
Shenna: hahahaha....thanks sean!!...gv me 5!!
Me: hmmm........you!!..Sean!!come here..!!
Sean: you!!Chon!!come here!!......ami!!(mommy)..see chon.....eappppp!!!!....

He is copying everybody's line...but end up scolding himself... still thinking the way to make him understand... how??

‪#‎imitation‬ ‪#‎echolalia‬ ‪#‎autism‬ ‪#‎autisticboy‬ ‪#‎mygiftedson‬ ‪#‎specialkid‬ ‪#‎parrot‬




20 March 2015


‪#‎autism‬ ‪#‎autistic‬ ‪#‎mygiftedson‬ ‪#‎specialkid‬ ‪#‎morningcall‬

This morning we got a special morning call from a special little boy...
at 6am...

"Chenna!!!!!...kap!!!!"
"DD!!!!!....kap!!!!"...
"Amiiiii!!!!!!....kap!!!!!"...
"Chon!!!....kap chon!!!"....
"Oukkkkkkapppppp!!!!!".....

All the above are his own words...

*kap/oukap=wake up.....





27 March 2015


Everytime when i stop at traffic light, and if it turns to red, sean will immediately changes it to 'N' gear n pulls the hand brake...hahaha...n i think he can drive....Lols!!!! Please click here and watch..tq..





30 March 2015


Improving in speech... well, he is a very busy little man, that's y no eye contact... lols!!...please click here and watch..tq

Update for February, 2015 (Sean admitted)


2015 CNY, the most unforgettable journey of my life..We traveled from Bintulu to Bintangor, and from Bintangor to Kuching.... Both kids were sick, dehydrated cause by vomiting n diarrhea... Sean was admitted and hospitalized...from 23-27 February 2015... both of them losing so much weight... can't forget their pale faces and swollen eyes that broke my heart into pieces, my heart filled with so much pain and fear at that time... how i wish i'm the one who was sick!!....But I'm glad it's all over, thank God for helping us to get through all the difficulties... make us realize the meaning of sacrifices and patience... the meaning of love for our children that brought us together as a husband and wife, we'll do anything for them...thanks for my fmly n friends who comfort us, especially my parents and my siblings....thank God we're back to bintulu safely.. amen..















Update for January, 2015 (Sean's birthday)


2 January 2015


After so many trials since he was 2.. he did it finally!!!.......let's write more sean, fighting!!!!!





3 January 2015

Sean learns to read...this is one of his daily routine...watch this..




10 January 2015

‪#‎autismsymptom‬ .....Obsession towards spinning objects....When i do laundry, he'll w8 till the w/machine spins...then he watches it spins from the top, till it finishes.....'circle in the sand, round and round...lalalala'....*that's y i prefer to do laundry at night, after he sleeps..





15 January 2015

Sean and his sister, Shenna sing Skyscraper.




22 January 2015

‪#‎Autismstory‬ ‪#‎autistic‬ ‪#‎autism‬ ‪#‎mygiftedson‬
I brought Sean to a crowd of children at shenna's school, just tried to see his reaction..it's been a long time since he was diagnosed with autism, we seldom bring him to the crowd...otherwise, we hv to becareful of his sudden tantrum, just hv to make sure he stays calm...

In the crowd, he started to pull me enter the school, all the children were already outside, maybe he tried to pull me out from the crowd...but i refused...he started to hit his eyes and ears with both hands, jumped and screamed....i need to ask the school guard to close the gate for a while...he did...at that time i quickly pull sean to the car...luckily, he's still under control..

Wondering how bad it was?..how does he feel?...hurt?confuse?angry?anxious?...



25 January 2015


My 2 little model..both grown up so fast...love both so much!!....‪#‎suspender‬ ‪#‎brotherandsister‬ ‪#‎sibling‬ ‪#‎love‬






26 January 2015

‪#‎autism‬ ‪#‎autistic‬ ‪#‎autismstory‬ ‪#‎mygiftedson‬‪#‎specialkid‬ ‪#‎imitation‬ ‪#‎repeat‬ ‪#‎echolalia‬
I was in a long Q traffic jam this morning...so i called my hubby to inform...but there's a little boy answered the phone, of coz it was Sean!...lols...

our conversation:
Me: hello..?
Sean: eyo..!
Me: sean? is that u?
Sean: is that u...
Me: where's daddy?
Sean: where dd...
Me: listen sean, please call dd for me?
Sean: call dd for me...
Me:..😧😧...oh ok...never mind... i'll call back..
Sean: i call back...
Me: bye sean, mommy love u
Sean: Sean yeb (love) mommy!...sean yeb mommy!..sean yeb mommy!!....(repeatedly)
Me: oo u r so sweet ....😙😙

— feeling loved.


Today is Sean's b'day..


Say happy birthday to this birthday boy!!!......He was born today at around noon 5 years ago...a boy who brought happiness to our family till today and forever...a special gift from God that we've ever have...Happy Birthday Sean!!...may God be with u always!!!... we luv you darling....😙😙😙💕💕..






29 January 2015

‪#‎imitation‬ ‪#‎autism‬ ‪#‎echolalia‬ ‪#‎autismstory‬ ‪#‎autistic‬ ‪#‎mygiftedson‬

Me: good morning sean...
Sean: good moming chon..
Me: how r u dear?did u sleep well
Sean: u sleep well...
Me: you want to nenen?
Sean: you want nenen...
Me: hmmm .....sean sean....
Sean: chon... chon....
Me: Arnold Schwarzenegger....
Sean: ??????
Me: cristiano ronaldo Leonardo de caprio Orlando....olwen pau...
Sean: ????~~  (he is blurr but he laughs too)....





Sean's update from facebook status 10 (December, 2014)


1 December 2014



wrote by me (mom)




4 December 2014


This is Sean's achievement and plan..





Bedtime story....

Shenna scratches sean's back and sings bedtime lullaby song for him...."go to sleep little sean, go to sleep my little brother... shut ur eyes, shut ur mouth, shut up shut up and shut up...don't u dare shout in my ear, coz i'll get up and take rotan 'phak' u...ooo buah hati mommy...mommy cayang cimang ooo buah ati mommy...modop cimang modop...."....hahahahaha...‪#‎apakareti‬.... bisaya and english mix together.... spontaneous lyrics created by shenna....lols....But amazingly, little Sean falls asleep ....he must be very tired....kudos to che che shenna....😅😅😅...‪#‎gelikatiku

‪#‎autismstory‬ ‪#‎autism‬ ‪#‎autistic‬ ‪#‎mygiftedson‬ ‪#‎specialkid‬ ‪#‎imitation‬



22 December 2015

Hilarious things about Sean...let's talk about his imitation...

When he was tantrum, he threw things on purpose, all of us were there too, but we just ignored him... Suddenly, he said, "Opuuuuu....mommy... see Sean ....."....haha....actually, that's his sister, shenna's script...she used to say that...he was imitating her line.....

He was playing with the washing machine, when he heard i came in, he stopped... i haven't said anything yet... ‪#‎OrgLomMdhPapa‬....then he said, "Sean, donsterb (don't disturb)"....‪#‎taukpun‬.....Actually, he is copying my line, that's what i used to say ok...

A few words he copy from us, "Sean, yai (lai).." , "Sean, ondayait (on the light)" ← coz he likes to on & off the light while i was in the bathroom, "Sean, go side (outside)"..."Sean, gon shap (don't shout)", "Sean, go way (away)", "Sean yeb (love) mommy"......etc......wow!! it's increasing....hope to hear his own script soon instead of shouting.....fighting!!!!





Sean's update from facebook status 9 (November, 2014)

3 November 2014
Naughty Sean...!!...this was at ppkat clinic while waiting for his turn to meet doctor...couldn't spend a minute longer there with this boy, migraine attack looorrr..





12 November 2014

Sean slapped me hard on my face, he likes to do it suddenly and without reason.... so i pranked him, covered my face with my both hands and cried loudly... of coz it's fake.... then, i see him from between my fingers... he cried too!!!!...and the louder i cry, the more tears came down on his cheeks..... lols.... and who says autistic child doesn't have emotion??.... ‪#‎autism‬‪#‎autistic‬ ‪#‎autismstory‬ ‪#‎mygiftedson‬ ‪#‎specialkids‬..



20 November 2014


‪#‎autismstory‬

Repetitive behaviour, this is common for autistic kids...while driving Sean to school and back, in the car he always played the same song...few weeks ago, he played "sad movie" an oldies song...over n over, everyday, don't know how many times a day...Recently he changes it to "tik tok" by kesha...repeated the whole way... No matter how i hide the song in the sd, he still can find it..yeah, search by himself by opening the files from the sd...he recognize the words, n remember how it spells...My jaw drop when i found out how he touch the cd player's screen with his lil finger, click open file step by step until he found the song....who teach him?nobody....maybe he saw me doing it and copy every step in his mind.... amazing isn't it?...

‪#‎autism‬ ‪#‎mygiftedson‬ ‪#‎autistic‬ ‪#‎specialkids‬

By the way, i set a password in his tablet, to control him from entering prohibited web or apps...i hv to remind myself not to enter the password in front of him, he will copy that, silently....tats y i change the password often...hmmmmm.....sean ....sean....

Moral of the story, nvr underestimate this boy!!!....



26 November 2014

‪#‎autismstory‬

He is getting hyper lately...It happened one very early morning, when everyone still asleep..i tot i heard a noise, so i woke up and found our house upside down, all toys together with the drawer were messy on the floor, fan collapsed, broken water pipe at kitchen etc.... I kno it's him, Sean did it...it was dark, i couldn't find him, but he ran to me, naked!!.... This is not the 1st time...i'm not always strong, i do get weaker sumtimes, and even got angry and tired, n cry...yes, it's painful inside...that's human emotion...but only parent's heart bared...!!...
Thanks to my hubby, he did well...n also ‪#‎bsg‬...i luv u gals...






Sean's update from facebook status 8 (October, 2014)

3 October 2014

Sean dropped his bottle and wet the floor, i stared at him angrily...he tried to run away and passed me without looking at me, n said in his low voice, "sowiee.."...lolss!!!!....he said sorry!!!...he's been improving a lot this year........thank God...
‪#‎autism‬ ‪#‎autistic‬ ‪#‎mygiftedson‬ ‪#‎autismstory‬ ‪#‎specialkid‬


6 October 2014

Woke up late today... As usual, the kids woke up early, watching cartoon coz today is public holiday... It's strange nobody wakes me up, normally sean would jump up n down on our bed, and roll on us...The 1st thing in the morning, he MUST has his milk... So i finally got up, backache n headache.... checking on those 2 kids, both of them lying down on the floor, n Sean has his milk in the bottle. ..that's surprise me...so i ask...
Me: shenna, who make Sean's milk?
Shenna: me!!...
Me: y u didn't wake me up?
Shenna: coz Sean hand me his bottle, many times. ..that's mean he wants me, not u...!!
Me: hahaha....oo ok....

Anyway, credits and kudos to che che Shenna....she too realise that, not every time, i mean only very few times, his brother would friend her...usually they played saperately....thank God, Sean is 'back', slowly....he begins to understand our loves for him...
‪#‎autism‬ ‪#‎autistic‬ ‪#‎mygiftedson‬ ‪#‎specialkids‬ ‪#‎autismstory‬


15 October 2014


He must be very tired, slept at OT class..





Sean makes me laugh...everyone should watch this vid, sean is counting from 1 to 60...At least he knows numbers although he can't pronounce it clearly ..lols..!!...watch this vid...tq..


‪#‎autismstory‬ ‪#‎mygiftedson‬ ‪#‎specialkids‬ ‪#‎autistic‬‪#‎autism‬. .



15 October 2014

Practicing daily greeting is a good and healthy things to do, it will came out naturally as it becomes a habit...i practice it daily with my kids...of course my eldest daughter copy it easily, such as, 'goodnight/good morning/goodbye/etc mommy n dd, i love u!', 'hi mom n dad', 'hello all' n etc...but my other autistic little son would just stare at me, smiling but no word coming out from his mouth....
One day, which is today, as i came back home from sending my eldest daughter to school, i went to my room, he was there playing his tab n lying down on the bed together with his dad...as usual i greeted him, "good morning sean the spiderman (he was wearing his spiderman pyjamas)"....unexpectedly, he answered me back without looking at me, "koo moming!"....once only, short and simple, but fast...lols....let's try it tomorrow again...God bless u son!

— feeling happy and excited.



25 October 2014

It is important for me to stay strong and positive rather than feel so down and weak whenever n whatever is going on or said about my 4y9m autistic son, Sean....A great reminder about Sean from his speech therapist yesterday somehow makes me realize how important being positive is...the reminder was about preparation for Sean's further condition, he might improve a little or maybe non at all in his speech...but he kept on remindng me and repeated these encouraging word "don't lose hope, don't gv up, mana tau dia boleh...bla bla bla..."...let's fight sean!!...nvr stop praying...i believe God has a better plan for u....- feel like to cry out loud...shouldn't feel so down, it's time to fight back

‪#‎autism‬ ‪#‎autistic‬ ‪#‎specialkid‬ ‪#‎autismstory‬ ‪#‎mygiftedson‬




27 October 2014


Combination of this small pieces into his imaginary model....great job Sean....!!!...

"There needs to be a lot more emphasis on what a child can do instead of what he cannot do..." Dr. Temple Grandin..

‪#‎autism‬ ‪#‎autistic‬ ‪#‎mygiftedson‬ ‪#‎specialkid‬ ‪#‎autismstory‬











28 October 2014

Autism story (Sean, 4y9m)..

It was 3 a.m. when he came into our room last night, and slept in between us...Early in the morning, i felt wet on the bed...aiyooo he 'pee pee'!!!!...I got up angrily, scolding at him non-stop...he was there standing nakedly beside our bed, waiting for me to finish my 'unfinished words.'...Suddenly he slapped my cheek softly and said, "gon shap!!"...and placed his pointing finger on his lips, "shhhhh!!!"... he makes me stop nagging with only 2 words...'gon shap' is don't shout...hahahaha....i was too excited till i almost drop my jaw...lolssss....Another new words, on his own...Yey!!!!


‪#‎autism‬ ‪#‎autistic‬ ‪#‎autismstory‬ ‪#‎mygiftedson‬‪#‎specialkid‬


 — feeling there's always a new hope for sean.



30 October 2014

Believe it or not.. Sean said prayer in mandarin, he learned it from his taska... I only realised it when he said 'amen' at the end of the sentence. ..lols....God bless u Sean....Aaaamennnn!!!!....

‪#‎autism‬ ‪#‎autistic‬ ‪#‎mygiftedson‬ ‪#‎specialkids‬‪#‎autismstory‬

 — feeling thankful.



Sean's video 3 (September, 2014)

6 September 2014

Just wanna share something new about my 4yo autistic son, Sean, he says something today, without imitate us, all by himself, for the 1st time ..He was playing with a scissor, and cut his own hair (he nvr wanted his hair to be cut, trust me, it's a disaster when it comes to haircut)..so i took the scissor from him, which i thought he wanna haircut, that's seems a good thing to me though..i brought him to the bathroom, and something remarkable happened when i said i'm going to cut his hair...immediately i took my hp and took this vid...he said, "I DON'T WANT!!!"....somehow, this is the 1st time we communicate by words...applause!
!!!.. ‪#‎autismstory‬‪#‎autism‬ ‪#‎autistic‬ ‪#‎mygiftedson‬ ‪#‎specialkids‬

https://m.facebook.com/story.php?story_fbid=929850950363407&id=100000155317488&_rdr



23 September 2014

Feeling great when ur kids grown up, even prouder when ur autistic son begins to follow ur instructions... kudos to my 4 yo autistic son, Sean, seems like he understands what i'm talking about, compare to last time it was very hard...but he still can't speak on his own...whenever i ask something, he just repeat my question n smile at me ..."NOT YET talk, but very soon" that's how i comfort myself... Looking backward, i saw my previous journey with him, it's not easy, feeling proud for all his tiny achievements; Looking forward, i aim for an independent young man, who take care of his old parents..... *sob...sob...sob...*..... I'm not asking for perfection in him, as i said, every little achievement count...don't worry son, u can do it, let's fight!!!....God be with u...

A must watch vid by our daughter, Shenna and son, Sean....c how a lil teacher teaches her autistic brother to read...so pure and natural...In the vid, Sean is doing body rocking (autism symptom), but it's reducing from time to time...thank God...


https://m.facebook.com/story.php?story_fbid=939490149399487&id=100000155317488&_rdr

#‎autism‬ ‪#‎autismstory‬ ‪#‎autistic‬ ‪#‎specialkid‬ ‪#‎mygiftedson‬